Tag Archives: memory care

Truth. Lies. Priceless Memories.

When I was young, I never dreamed that one day, fibbing to my mom would be better than telling her the truth. Instead, I strived to dodge that age-old, childhood taunt: Liar liar pants on fire.

I’d be lying now though if I said that fibs never crossed my lips. In fact, before I aged into double digits, I would silently breathe that insult to myself whenever a Catholic priest slid open the panel that separated us inside a confessional. Gazing through the shrouded window at the shadowy figure opposite me, I always spoke in a hushed tone, praying that whoever sat on the far side of the confessional could not hear my litany of sins, including my lies.

Karen Antonietti First Communion 1963
First Communion 1963

I recited the same list and assigned a corresponding number at every telling. I fought with my brothers and sisters nine times. I disobeyed my parents seven times. I lied eight times…Though I did not keep a tally, I was certain some of my infractions numbered ten or more. Hence, liar liar.

Fast forward fifty-some years.

I hunkered in assisted living with my eighty-nine-year-old mother after she broke her pelvis in October 2020. Her senior living community was on lockdown due to the COVID-19 pandemic, but I was allowed to be her essential caregiver during her rehabilitation period. Throughout my fourteen-plus week stay, her bones healed. Sadly, her dementia progressed.

Mom’s grasp of reality fluctuated. Sometimes she knew who I was. Other times, she thought I was her friend Shirley. One afternoon, my sister Laurie called while Mom and I were eating lunch. During their conversation, Mom said, “No, Karen’s not here.” She listened to Laurie for a moment, then turned to me with a quizzical look and asked, “What’s your name?”

“Karen,” I said.

Her face softened into a smile. “Oh, you little pup!” she replied, and her words and mirth made me laugh. 

"Shirley" Karen Buley and mom, Kay Antonietti in assisted living, January 2021.
“Shirley” and Kay January 2021

Most days, Mom remembered that our Papa had died. The large, foam-backed banner that sported his picture, birth and death dates, and the words, “Forever In Our Hearts,” was propped atop her dresser. When she made loops with her walker, she’d often smile and say, “Hi, Pops,” throwing in an occasional, “Pray for us.”

After she regained her strength, we made weekly outings to a coffee shop drive through on our way to visit Papa’s grave. On the fourth anniversary of his death, we were parked in our usual spot at the cemetery. “I haven’t seen your dad in a long time,” she said. Sorrow laced her voice.

I replied with the gentle words that had softened her sadness when I’d needed them before. “Papa’s in heaven.”

“He died?” she wailed. “Oh, Dan. What did I do to you? I’m so sorry…”

I longed to dial back my words.

@kmbuley

Therapeutic Fibbing softens the ache when your heart is breaking into a million tiny bits. #memoryloss #dementia #alzheimers #familycaregiver #dementiaawareness #motheranddaughter #fyp #dementiaadvocate #memorycare #livingwithdementia #caregiverlife #vasculardementia

♬ Classical piano performance “letter to parents” – Popolony

I had recently learned about “therapeutic fibbing”—bending the truth to match her reality—and “redirection”—shifting her focus. In hindsight, I desperately wished I had used one of those techniques that day and struggled to give myself grace.

Two-and-a-half weeks later, the senior living community hosted a reading and author’s chat for my novel Perimenopausal Women With Power Tools. Mom sat in the front row, alternately beaming and dozing. Guilt haunted me, knowing that, like my protagonist, Beth, I too was harboring a lie of omission—“the worst [kind],” according to my eighteen-year-old character, Kate.

Unbeknownst to my mom, she would be moving into memory care the following week. I’d stay with her for two days, then return home. My heart was breaking.

I spent several fitful nights lying beside her in her queen-size bed, agonizing about leaving and wishing for clairvoyance. If I knew Mom’s days were numbered, I would power alongside her until the end.

But then moving day arrived. I chased sleep for two nights in memory care, tucked into a rollaway at the foot of her twin bed. Every cell in my body ached at the thoughts of saying goodbye.

I waited until the last minute to tell Mom I was leaving. She was in the living room, watching a musical with several of the ladies. I said quiet goodbyes to staff and some of the residents, then squatted in front of her chair. I still had vacation time, plus hadn’t dipped into the Family and Medical Leave Act, but I couldn’t admit that staying and watching her decline was so damn hard. Instead, I lied and said, “I have to go back to work.”

“You do?” Anguish filled her face, and her eyes puddled as she grabbed my hands.

“I do.” I straightened, then added “I’ll be back,” and kissed the top of her head through my mask. “I’ll call you when I get home,” I said, knowing my standard words were a fib now too. “I love you,” I managed, unable to stop the quiver, but turning before tears streaked my cheeks.

I did go back, including for a weeklong stay and some other overnights throughout the next twenty-six months. During that time, Mom graduated from hospice care twice, then was referred a third time the day before she died. I was blessed to be at her bedside when she exhaled a final, peaceful sigh.

In truth, I’m grateful for more than sixty years of memories.

Kay & Dan Antonietti 1995.
Kay & Dan Antonietti 1995

I’m also grateful that, whether my mom is somewhere over the rainbow or on the other side of the veil, her journey through dementia is over and she’s living her new, best life.

Karen Buley and Kay Antonietti

Flexibility, Resilience and the Art of Friendship

The past eighteen months reinforced the notion that life doesn’t always go according to plan. As Perimenopausal Women with Power Tools neared its pub date in spring, 2020, I envisioned a book release party. In addition to a short reading, there would be food, drink and conversation—a tribute to the lively evenings my characters shared throughout the book. I pictured additional book readings to follow. Then COVID-19 reared its ugly head.

Montana Gov. Steve Bullock ordered a temporary shelter-in-place. As I wrote here, I had much to be thankful for. Thus, scrapping a book launch seemed a small price to pay. While I hunkered in, I scoured how-to guides on do-it-yourself book trailers. Both teacher and student, this was my result.

Five months after Perimenopausal Women with Power Tools made its quiet entrance into the world, I hunkered in again—this time in an assisted living neighborhood. My eighty-nine-year-old mother had broken her pelvis. Though Touchmark, her senior living community, was locked down, administration welcomed me in as her essential caregiver.

Karen and Kay October 27, 2020

Once our two-week cautionary quarantine ended, we walked in and around the community, both with and without her physical therapist. My mom’s pelvic fractures healed in the fourteen weeks she and I bunked together. Sadly, her dementia worsened.

The week before she moved into a memory care unit, Mom had a front-row seat at the inaugural reading of Perimenopausal Women with Power Tools. Touchmark’s COVID-19 precautions remained in place, so the group was limited to a small number of masked and socially distanced residents.

Wearing both mask and face shield, I gazed at the audience and contemplated my mom. Her sparkling blue eyes shone with pride. As I began to read, a rush of heat coursed through me. I was reading to two of my biggest fans—one in person and the other in spirit. Mom’s eyes flickered shut at times, but she beamed during the applause.

Nearly eight months have passed since, heavyhearted, I packed my bags and returned home. The weeks I spent with my mom, culminating with two nights in memory care, were priceless. I treasure our continued visits. But with the uptick in Montana’s COVID-19 cases, I pray her community will not have to endure another lockdown.

Next month, I will hold my mom and dad in my heart when I present Perimenopausal Women with Power Tools to a bigger audience. I’m thrilled to be joining Eileen Garvin for a Montana Book Festival event—With a Little Help From My Friends: Writing Fictional Friendships.

2021_MBF_Event-Image (Friendship-Fiction).jpg

This year’s festival pivoted from a hybrid in-person and online affair to an entirely virtual event. But again, as thousands continue to lose loved ones and struggle in innumerable ways, foregoing an in-person book event feels like a small price to pay.

My parents modeled flexibility and resilience. They also taught me the art of friendship. As a young girl, I didn’t realize the lessons I was gleaning when they hosted an array of friends in our cozy Missoula home. Three or four families would gather, assembling double-digit numbers of offspring. We kids would spill outside and engage in noisy games—the grown-ups settling occasional skirmishes—and some of those kids remain my lifelong friends.

A few years later in Butte, I remember watching with envy as my mom’s “Club” convened at our house. My father would scoot out before the first guest arrived. My siblings and I were allowed a bit of time with the ladies before they broke out the pinochle cards. Then, we would head upstairs to our bedrooms. Peals of laughter, the clink of ice cubes and wafts of cigarette smoke followed us up.

During our shared weeks at Touchmark, my mom didn’t always remember who I was. Sometimes she thought I was her friend Shirley. The name always made me smile. Two of the moms from those early Missoula years were named Shirley. But I was Shirley Reinig, a member of “The Church Ladies”—a newer group of Helena friends. My mom and Shirley were retired nurses and on occasion, Mom worried that we had to go to work. One night, she called from the bedroom minutes after I had helped her tuck into bed. “Shirley?”

Despite the dim light, I could see her furrowed brow as I approached the bed. She didn’t wait for me to respond before rushing, “Do you think we’re going to get canned?”

“No.” I stroked her cheek. “We have the night off.”

“Oh good.” She smiled, then closed her eyes.

Three of “The Church Ladies” celebrating Kay’s 90th birthday.
Kay Antonietti, Shirley Reinig and Joanne Anderson-July 25, 2021

Yes, life doesn’t always go according to plan. So we pivot or punt and, if we’re lucky, we have memories to hold dear. I will forever cherish the irreplaceable weeks I spent with my mom. Lines from the movie Airplane hold new meaning now. And discovering that Mom would be moving into a memory care unit with two other Shirleys felt serendipitous.

Perimenopausal Women with Power Tools is dedicated

To My Friends New, Old, and In-Between

On October 16 at 2:00 PM MDT, Eileen Garvin and I will chat about crafting fictional friendships. Registration is free. So whether you live in Grants Pass, New York City or places in between, I hope you’ll join us.