Tag Archives: COVID-19

Truth. Lies. Priceless Memories.

When I was young, I never dreamed that one day, fibbing to my mom would be better than telling her the truth. Instead, I strived to dodge that age-old, childhood taunt: Liar liar pants on fire.

I’d be lying now though if I said that fibs never crossed my lips. In fact, before I aged into double digits, I would silently breathe that insult to myself whenever a Catholic priest slid open the panel that separated us inside a confessional. Gazing through the shrouded window at the shadowy figure opposite me, I always spoke in a hushed tone, praying that whoever sat on the far side of the confessional could not hear my litany of sins, including my lies.

Karen Antonietti First Communion 1963
First Communion 1963

I recited the same list and assigned a corresponding number at every telling. I fought with my brothers and sisters nine times. I disobeyed my parents seven times. I lied eight times…Though I did not keep a tally, I was certain some of my infractions numbered ten or more. Hence, liar liar.

Fast forward fifty-some years.

I hunkered in assisted living with my eighty-nine-year-old mother after she broke her pelvis in October 2020. Her senior living community was on lockdown due to the COVID-19 pandemic, but I was allowed to be her essential caregiver during her rehabilitation period. Throughout my fourteen-plus week stay, her bones healed. Sadly, her dementia progressed.

Mom’s grasp of reality fluctuated. Sometimes she knew who I was. Other times, she thought I was her friend Shirley. One afternoon, my sister Laurie called while Mom and I were eating lunch. During their conversation, Mom said, “No, Karen’s not here.” She listened to Laurie for a moment, then turned to me with a quizzical look and asked, “What’s your name?”

“Karen,” I said.

Her face softened into a smile. “Oh, you little pup!” she replied, and her words and mirth made me laugh. 

"Shirley" Karen Buley and mom, Kay Antonietti in assisted living, January 2021.
“Shirley” and Kay January 2021

Most days, Mom remembered that our Papa had died. The large, foam-backed banner that sported his picture, birth and death dates, and the words, “Forever In Our Hearts,” was propped atop her dresser. When she made loops with her walker, she’d often smile and say, “Hi, Pops,” throwing in an occasional, “Pray for us.”

After she regained her strength, we made weekly outings to a coffee shop drive through on our way to visit Papa’s grave. On the fourth anniversary of his death, we were parked in our usual spot at the cemetery. “I haven’t seen your dad in a long time,” she said. Sorrow laced her voice.

I replied with the gentle words that had softened her sadness when I’d needed them before. “Papa’s in heaven.”

“He died?” she wailed. “Oh, Dan. What did I do to you? I’m so sorry…”

I longed to dial back my words.

@kmbuley

Therapeutic Fibbing softens the ache when your heart is breaking into a million tiny bits. #memoryloss #dementia #alzheimers #familycaregiver #dementiaawareness #motheranddaughter #fyp #dementiaadvocate #memorycare #livingwithdementia #caregiverlife #vasculardementia

♬ Classical piano performance “letter to parents” – Popolony

I had recently learned about “therapeutic fibbing”—bending the truth to match her reality—and “redirection”—shifting her focus. In hindsight, I desperately wished I had used one of those techniques that day and struggled to give myself grace.

Two-and-a-half weeks later, the senior living community hosted a reading and author’s chat for my novel Perimenopausal Women With Power Tools. Mom sat in the front row, alternately beaming and dozing. Guilt haunted me, knowing that, like my protagonist, Beth, I too was harboring a lie of omission—“the worst [kind],” according to my eighteen-year-old character, Kate.

Unbeknownst to my mom, she would be moving into memory care the following week. I’d stay with her for two days, then return home. My heart was breaking.

I spent several fitful nights lying beside her in her queen-size bed, agonizing about leaving and wishing for clairvoyance. If I knew Mom’s days were numbered, I would power alongside her until the end.

But then moving day arrived. I chased sleep for two nights in memory care, tucked into a rollaway at the foot of her twin bed. Every cell in my body ached at the thoughts of saying goodbye.

I waited until the last minute to tell Mom I was leaving. She was in the living room, watching a musical with several of the ladies. I said quiet goodbyes to staff and some of the residents, then squatted in front of her chair. I still had vacation time, plus hadn’t dipped into the Family and Medical Leave Act, but I couldn’t admit that staying and watching her decline was so damn hard. Instead, I lied and said, “I have to go back to work.”

“You do?” Anguish filled her face, and her eyes puddled as she grabbed my hands.

“I do.” I straightened, then added “I’ll be back,” and kissed the top of her head through my mask. “I’ll call you when I get home,” I said, knowing my standard words were a fib now too. “I love you,” I managed, unable to stop the quiver, but turning before tears streaked my cheeks.

I did go back, including for a weeklong stay and some other overnights throughout the next twenty-six months. During that time, Mom graduated from hospice care twice, then was referred a third time the day before she died. I was blessed to be at her bedside when she exhaled a final, peaceful sigh.

In truth, I’m grateful for more than sixty years of memories.

Kay & Dan Antonietti 1995.
Kay & Dan Antonietti 1995

I’m also grateful that, whether my mom is somewhere over the rainbow or on the other side of the veil, her journey through dementia is over and she’s living her new, best life.

Karen Buley and Kay Antonietti

Flexibility, Resilience and the Art of Friendship

The past eighteen months reinforced the notion that life doesn’t always go according to plan. As Perimenopausal Women with Power Tools neared its pub date in spring, 2020, I envisioned a book release party. In addition to a short reading, there would be food, drink and conversation—a tribute to the lively evenings my characters shared throughout the book. I pictured additional book readings to follow. Then COVID-19 reared its ugly head.

Montana Gov. Steve Bullock ordered a temporary shelter-in-place. As I wrote here, I had much to be thankful for. Thus, scrapping a book launch seemed a small price to pay. While I hunkered in, I scoured how-to guides on do-it-yourself book trailers. Both teacher and student, this was my result.

Five months after Perimenopausal Women with Power Tools made its quiet entrance into the world, I hunkered in again—this time in an assisted living neighborhood. My eighty-nine-year-old mother had broken her pelvis. Though Touchmark, her senior living community, was locked down, administration welcomed me in as her essential caregiver.

Karen and Kay October 27, 2020

Once our two-week cautionary quarantine ended, we walked in and around the community, both with and without her physical therapist. My mom’s pelvic fractures healed in the fourteen weeks she and I bunked together. Sadly, her dementia worsened.

The week before she moved into a memory care unit, Mom had a front-row seat at the inaugural reading of Perimenopausal Women with Power Tools. Touchmark’s COVID-19 precautions remained in place, so the group was limited to a small number of masked and socially distanced residents.

Wearing both mask and face shield, I gazed at the audience and contemplated my mom. Her sparkling blue eyes shone with pride. As I began to read, a rush of heat coursed through me. I was reading to two of my biggest fans—one in person and the other in spirit. Mom’s eyes flickered shut at times, but she beamed during the applause.

Nearly eight months have passed since, heavyhearted, I packed my bags and returned home. The weeks I spent with my mom, culminating with two nights in memory care, were priceless. I treasure our continued visits. But with the uptick in Montana’s COVID-19 cases, I pray her community will not have to endure another lockdown.

Next month, I will hold my mom and dad in my heart when I present Perimenopausal Women with Power Tools to a bigger audience. I’m thrilled to be joining Eileen Garvin for a Montana Book Festival event—With a Little Help From My Friends: Writing Fictional Friendships.

2021_MBF_Event-Image (Friendship-Fiction).jpg

This year’s festival pivoted from a hybrid in-person and online affair to an entirely virtual event. But again, as thousands continue to lose loved ones and struggle in innumerable ways, foregoing an in-person book event feels like a small price to pay.

My parents modeled flexibility and resilience. They also taught me the art of friendship. As a young girl, I didn’t realize the lessons I was gleaning when they hosted an array of friends in our cozy Missoula home. Three or four families would gather, assembling double-digit numbers of offspring. We kids would spill outside and engage in noisy games—the grown-ups settling occasional skirmishes—and some of those kids remain my lifelong friends.

A few years later in Butte, I remember watching with envy as my mom’s “Club” convened at our house. My father would scoot out before the first guest arrived. My siblings and I were allowed a bit of time with the ladies before they broke out the pinochle cards. Then, we would head upstairs to our bedrooms. Peals of laughter, the clink of ice cubes and wafts of cigarette smoke followed us up.

During our shared weeks at Touchmark, my mom didn’t always remember who I was. Sometimes she thought I was her friend Shirley. The name always made me smile. Two of the moms from those early Missoula years were named Shirley. But I was Shirley Reinig, a member of “The Church Ladies”—a newer group of Helena friends. My mom and Shirley were retired nurses and on occasion, Mom worried that we had to go to work. One night, she called from the bedroom minutes after I had helped her tuck into bed. “Shirley?”

Despite the dim light, I could see her furrowed brow as I approached the bed. She didn’t wait for me to respond before rushing, “Do you think we’re going to get canned?”

“No.” I stroked her cheek. “We have the night off.”

“Oh good.” She smiled, then closed her eyes.

Three of “The Church Ladies” celebrating Kay’s 90th birthday.
Kay Antonietti, Shirley Reinig and Joanne Anderson-July 25, 2021

Yes, life doesn’t always go according to plan. So we pivot or punt and, if we’re lucky, we have memories to hold dear. I will forever cherish the irreplaceable weeks I spent with my mom. Lines from the movie Airplane hold new meaning now. And discovering that Mom would be moving into a memory care unit with two other Shirleys felt serendipitous.

Perimenopausal Women with Power Tools is dedicated

To My Friends New, Old, and In-Between

On October 16 at 2:00 PM MDT, Eileen Garvin and I will chat about crafting fictional friendships. Registration is free. So whether you live in Grants Pass, New York City or places in between, I hope you’ll join us.

Social distance sign in the Hellgate High School Library

Library Musings 2021

I shelved cartloads of books in the Hellgate High School library this week. An assortment of fiction, nonfiction and graphic novels, the books were a confirmation that reading was alive and well and that we were moving toward pre-pandemic days.

Book checkouts had increased in February when we reinstated independent browsing. Lingering reminders of the COVID-19 pandemic remain though: disinfectant, hand sanitizer and alcohol wipes scattered throughout the library; masked students and staff; plexiglass barriers framing the circulation desk; social-distancing signs and one-chair-per-table workstations.

Hellgate High School Library

Two weeks ago, a senior greeted me with smiling eyes when I entered a bathroom near the neighboring Commons. ”I want to thank you librarians,” Kara said. “People talk about essential workers—like firemen and grocery store clerks and frontline workers—but I want to say, ‘what about librarians?’” She waved a hand. “You guys do so much and are essential…for knowledge. So, thank you!”

Her words upheld an article I had read days earlier, School Libraries Are the Bedrock of Freedom. As the authors state, “[Benjamin] Franklin’s belief—that libraries and education are crucial to democracy—has never been more true than in our current age of disinformation, with the threat it poses to the republic.”

Kara’s words reminded me, too, of a post I had written in 2015. My words, “She, and others, continue to affirm my conviction that libraries and books are two of our most precious resources,” ring truer now than ever before.

HHS library circulation desk

Protocols for the 2021-2022 school year are yet to unfold. I am hopeful that by August the plexiglass barriers and social-distancing signs will come down. Chairs will again bookend our tables. Our circulation desks will be busier than even before. And masks will be distant memories. I miss seeing faces and sharing smiles.

Project Steady Eddie

I am four-plus weeks into my gig as an essential caregiver for my eighty-nine-year-old mother. Sitting in her dentist’s reception area while my sister scheduled a return appointment, Mom felt “dizzy,” so stood for reasons unknown. Up one moment, down the next, then an ambulance transported her to the hospital because she could not bear weight on her right leg.

She fractured her pelvis in two places. Neither break required surgery, but she was admitted for therapy and pain management. More lucid than not while she was in the Emergency Department (ED), Mom was not granted an essential caregiver beyond the ED due to COVID-19 visitor restrictions. A bed alarm, a video camera, and a room near the nurses’ station superseded having a family member at the bedside.

Three days later, I was allowed into the hospital for discharge instructions. COVID-19 visitor restrictions were in place at Mom’s senior living community too. But administration gave me permission—following a COVID-19 test—to quarantine with her and help with rehab.

Sometimes Mom remembers why we’re roommates in her assisted living apartment. Other times she does not. Some days I’m “Karen.” Other days I’m not.

She had a walker before her fall, but it sat—unused —outside her door. Mom was given a slower, two-wheel walker in the hospital, which she uses in her apartment. Last week she graduated to her four-wheel walker for outdoor treks and walks around the community. But she doesn’t always remember she needs wheels whenever she’s up.

“Who’s the little lady that belongs to that?” she asked days ago, pointing to the two-wheel walker parked beside her dinette table.

“You’re the little lady that belongs to that. Steady Eddie,” I said, resting a hand on her shoulder. “You’re Steady, and this is Eddie.” I patted the walker. “You two are a team.”

“Oh, my,” Mom said with a grin.

Kay Antonietti, November 2020
Mom and her wheels

This Thanksgiving week, we’ll celebrate what would have been my dad’s ninety-third birthday. And we’ll offer prayers of gratitude for Mom’s continued healing and our sweet bonding time.

Bullock, Cooney, Williams: Election 2020

Montana’s 2020 Election

Growing up in Butte, Montana, I learned invaluable lessons from my parents, Dan and Kay Antonietti. Lifelong Catholics and Democrats, they taught me and my seven siblings fundamental values like honesty, compassion, integrity, fairness, generosity and respect. They taught us to “love thy neighbor as thyself.” In their messages to my twelve-year-old self, they wrote “be charitable to all.” And when we recited The Pledge of Allegiance, they affirmed that “liberty and justice for all” meant exactly that. All.

As we close in on the 2020 election, thoughts of my dad and mom swirl through my mind. So too do memories of Montana’s 2017 congressional special election. Embracing the principles instilled during my youth, I campaigned hard for the Democratic candidate. I phone banked, knocked doors, and tabled at the University of Montana. I harnessed my son Eric’s courage and graduated into solo door-knocking excursions, something I thought I would never do. I described my trajectory here.

But amid the coronavirus pandemic, I’ve scrapped door knocking this year. Instead, I’m phone banking alone at the dining room table. I’ve penned two hundred postcards, displayed yard signs and bumper stickers, and written a letter to the editor.

Postcards to Swing States: Montana 2020
Postcards to Swing States

Our Papa died in January 2017. A World War II veteran, he was elected State Commander of Montana VFW in 1991. He later served as Montana VFW’s Legislative Chairman. Throughout his last twenty years, he testified on veterans’ behalf at both the national and state levels. Always his helpmate, Gram was his constant advocacy partner for the last seven.

In 2015, Gov. Steve Bullock invited my parents to Montana’s capitol. Though they had been there countless times, I had the honor of accompanying them on that special occasion. Gov. Bullock commended my dad for his years-long dedication to veterans and their families. Acknowledging my mom’s steadfast support, he thanked her too. Their humble pride was palpable. So was Gov. Bullock’s admiration.

Gov. Steve Bullock and Dan Antonietti, July 2015
Gov. Steve Bullock and Dan Antonietti, July 2015
Gov. Steve Bullock with Dan and Kay Antonietti and Karen Buley, July 2015.
Kay Antonietti, Gov. Steve Bullock, Dan Antonietti, Karen Buley

Now Governor Steve Bullock is running for U.S. Senate. Montana’s Lt. Governor, Mike Cooney, a Butte native like my parents, is running for governor. And Kathleen Williams, a three-term Montana legislator, is running for Congress. During the years Papa navigated the halls of Montana’s capitol, he visited with all three. He would be so proud to vote for each of them in 2020, as well as other Democrats up and down the ballot.

Cooney. Bullock. Williams. Montana's 2020 election.
Cooney. Bullock. Williams. 2020

Gram turned eighty-nine in August. Her memory fluctuates, but she remembers I’ve been phone banking for Montana’s Democratic candidates. She often asks, “Did you get everything done?” Occasionally she’ll pause, then add “for the election?” When I say I’m making calls one night a week, her reply is always the same. “God love you. I hope they win.”

Kay Antonietti, Spring Meadow Lake State Park
Kay Antonietti, Spring Meadow Lake State Park

In the quiet of my heart, I hear Papa echo her words.

Dan & Kay Antonietti 1965

1968 Words Ring True

I rediscovered two messages from my parents in my Log -o-Life. My “baby book,” its four-page index implies a long and productive life. Numerous pages are incomplete. Some are not applicable, like “Doctor of Philosophy Diploma” and “Military Record.” Others reference experiences that slipped by, unrecorded: High School Activities, Transcript of College Credits, Publications, and more. The Middle Age Photo page is blank. And though there are seven pages for autographs, there is a single entry. Laurie Antonietti – 11/10/69.

Karen & Laurie Antonietti 1964
Karen & Laurie Antonietti 1965
Dan & Kay Antonietti 1965
Dan & Kay Antonietti 1965

My parents penned their notes on my dad’s forty-first birthday—November 25, 1968. My mom was thirty-seven. Written to a preadolescent baby boomer, their words are precious. Many are timeless.

Father's Message To His Child 1968

“The game of life is a challenge. Especially for your generation. Play it fair and always play it to the best of your ability. Retain your faith, be charitable to all and refuse to do wrong.”

Mother's Message To Her Child 1968

“Stand by your convictions and what you have been taught and know what is right – always be charitable to all – and honest with yourself and others, and just always do your best.”

Dan, Karen, & Kay Antonietti 1970
Dan, Karen, & Kay Antonietti 1970

My dad has been gone three and a half years.

My mom, on the cusp of her eighty-ninth birthday, lives at Touchmark, a senior living community. COVID-19 restrictions have limited her interactions with family and non-Touchmark friends. Aside from a pair of respites piggybacked onto medical appointments, she has had one outing since March. Following a doctor visit three weeks ago, she waited in the car while I ran into Target. She needed laundry detergent, but I had to remind her she could not go into the store.

When I returned to the car, she said, “A lot of people aren’t wearing those things…I can’t believe it.” She pointed to her mask. “We might have this for the rest of our lives.” She sighed. “Do you think they’ll be able to have the wedding?”

“I don’t know,” I replied.

Mom’s memory waxes and wanes, and sometimes she struggles with words. But she remembered something about the pandemic. And her thoughts swung to the granddaughter who had already rescheduled her wedding once.

When I reread these words from long ago, I was reminded of our conversation in the Target parking lot. If my dad had been in the car with us, he would have echoed what my mom tried to say.

Be charitable to all. And wear a mask.

Helena Women's March January 2020
Helena Women’s March January 2020

Wildflowers, Birdsong, and Missing My Mom

Montana is three weeks into Phase One reopening amidst COVID-19. During our previous shelter-in-place order, outdoor exercise was acceptable while we adhered to social distancing guidelines and limited groups to ten or less.  In our state dubbed “Big Sky Country,” access to public lands abounds.

Yesterday, inspired by a friend’s Facebook photo posted days earlier, I drove ten miles from home to Mount Jumbo. A plethora of vehicles filled the small parking area and lined both sides of Lincoln Hills Drive. I eased into an empty spot, then crossed to the trailhead. Arrowleaf balsamroot blanketed the hillside, and birdsong filled the air.

The North Loop Trail, new to me, extended right and left. I turned right. Then, at a T-intersection, I left the wide, logging-road grade for a narrower, steeper path—the Woods Gulch – Sheep Mountain Trail. Considering the number of cars and trucks parked below, I encountered far fewer people during my eighty-minute meandering than I expected.

A lone hiker and dog bypassed me as I stopped to take photos. Along the way, I met two more solitary hikers, three groups of mountain bikers, three parties of hikers, and three more dogs. An abundance of wildflowers and spring growth peppered the mountain. I’m grateful for the family of four and later, a group of friends, that schooled me on arnica, shooting stars, larkspur, a ballhead waterleaf, and prairie stars.

Shooting stars wildflowers on Mount Jumbo.
Shooting stars
Arnica
Arnica
Ballhead waterleaf on Mount Jumbo
Ballhead waterleaf

I stood more than six feet away and secured my mask while we chatted. A blue surgical mask, it was one I’d worn to a cesarean birth years ago. Occasionally, I’d bring my used masks and disposable, bouffant caps home and add them to the dress-up clothes. I had no idea those old masks would be reused as personal protective equipment—PPE—years later.

On the fortieth anniversary of Mount St. Helens eruption, I’m reminded of quarantine and masks.  As a practicing RN, I was deemed an essential worker, though I don’t recall if that was the term used to give me permission to leave my home and traverse our ash-covered city. The restrictions were short-lived in 1980, unlike the path we’re navigating today.

Our trajectory through the COVID-19 pandemic is fluid as new data unfolds. My mom, a resident of a senior living community one hundred twenty miles away, has been quarantined since March 14th. I applaud the care to keep her and her cohorts safe, but I miss her. Until our state reaches Phase Three of the reopening plan though, quarantine for such communities will continue. So I savor daily phone calls with Mom and look forward to the day we can be together again.

Karen Buley and her mom, Kay Antonietti, at 2020 Montana Women's March.
Mom and I at 2020 Montana Women’s March

In the meantime, I’ll practice social distancing, wear a mask in public, and relish the beauty and birdsong around me.

Photo by USGS on Unsplash

Navigating Uncharted Territory

The COVID-19 pandemic has thrust us into uncharted territory. Last week, nearly 3.3 million Americans filed for unemployment benefits. Three days ago, we learned the U.S. leads the world in the number of confirmed COVID-19 cases. Closer to home, Montana reported its first COVID-19 death minutes after Gov. Steve Bullock ordered us to shelter-in-place beginning yesterday at 12:01 a.m.

The CDC advises us to take breaks from reading, watching, or listening to stories about the pandemic. But as we’re hunkered in, often with smart phones or remotes at our fingertips, heeding that advice can be a challenge. Anxiety and fear run deep.

I’m mindful of the privileges I have that so many others do not: a stable income, housing, food security, friends and family, books, and good health. I take none of them for granted. In response to a friend’s Facebook post this week about embracing gratitude for a warm house, little worries, a fridge full of food, and other comforts, a man replied, “Good points, but I’m still praying for employment security during this time. It’s a lot of stress.”

Stress beyond my imagination, truthfully. Rich and I volunteered twice this week at Missoula Food Bank & Community Center. We stayed past our scheduled 11-1 shifts both days because there was nobody to take over for us. Sue, the Friday volunteer that replaced Chandler on our assembly line of three, was scheduled to receive a foster dog from the Humane Society of Western Montana that evening. On the cusp of Montana’s shelter-in-place directive, the animal shelter geared up to operate without volunteers.

After we left the food bank Friday afternoon, staff made the difficult decision to suspend volunteer activity inside its building. However, drivers will still be utilized for the senior home delivery program.

As we hunker in, I offer these thoughts. If you are able, please:

  • donate to an organization that mitigates food insecurity or provides financial assistance to those in need
  • apply to your local animal shelter to foster an animal if a need arises (As of yesterday, Missoula’s Humane Society had enough foster families, though they were accepting applications to fill future needs if necessary.)
  • donate blood
  • support a local business that offers curbside pickup, takeout, or delivery
  • shop for someone unable to access a grocery store
  • call and check in with family members and friends
  • explore websites like COVID-19: Missoula City-County Joint Information Center to learn additional ways to help

Along with limiting our time immersed in news stories and social media, the CDC recommends we exercise, eat well, meditate, share our concerns with others, get plenty of sleep, and more. Some people, due to a myriad of circumstances, might find these guidelines difficult or even impossible. So please, do what you can to help those in need.

And to the health care workers, first responders, pharmacists, grocery store employees, sanitation workers, and all who are doing essential work to feed, care for, and keep us safe, thank you. This video is for you.

Feature Photo by USGS I Unsplash