Truth. Lies. Priceless Memories.

When I was young, I never dreamed that one day, fibbing to my mom would be better than telling her the truth. Instead, I strived to dodge that age-old, childhood taunt: Liar liar pants on fire.

I’d be lying now though if I said that fibs never crossed my lips. In fact, before I aged into double digits, I would silently breathe that insult to myself whenever a Catholic priest slid open the panel that separated us inside a confessional. Gazing through the shrouded window at the shadowy figure opposite me, I always spoke in a hushed tone, praying that whoever sat on the far side of the confessional could not hear my litany of sins, including my lies.

Karen Antonietti First Communion 1963
First Communion 1963

I recited the same list and assigned a corresponding number at every telling. I fought with my brothers and sisters nine times. I disobeyed my parents seven times. I lied eight times…Though I did not keep a tally, I was certain some of my infractions numbered ten or more. Hence, liar liar.

Fast forward fifty-some years.

I hunkered in assisted living with my eighty-nine-year-old mother after she broke her pelvis in October 2020. Her senior living community was on lockdown due to the COVID-19 pandemic, but I was allowed to be her essential caregiver during her rehabilitation period. Throughout my fourteen-plus week stay, her bones healed. Sadly, her dementia progressed.

Mom’s grasp of reality fluctuated. Sometimes she knew who I was. Other times, she thought I was her friend Shirley. One afternoon, my sister Laurie called while Mom and I were eating lunch. During their conversation, Mom said, “No, Karen’s not here.” She listened to Laurie for a moment, then turned to me with a quizzical look and asked, “What’s your name?”

“Karen,” I said.

Her face softened into a smile. “Oh, you little pup!” she replied, and her words and mirth made me laugh. 

"Shirley" Karen Buley and mom, Kay Antonietti in assisted living, January 2021.
“Shirley” and Kay January 2021

Most days, Mom remembered that our Papa had died. The large, foam-backed banner that sported his picture, birth and death dates, and the words, “Forever In Our Hearts,” was propped atop her dresser. When she made loops with her walker, she’d often smile and say, “Hi, Pops,” throwing in an occasional, “Pray for us.”

After she regained her strength, we made weekly outings to a coffee shop drive through on our way to visit Papa’s grave. On the fourth anniversary of his death, we were parked in our usual spot at the cemetery. “I haven’t seen your dad in a long time,” she said. Sorrow laced her voice.

I replied with the gentle words that had softened her sadness when I’d needed them before. “Papa’s in heaven.”

“He died?” she wailed. “Oh, Dan. What did I do to you? I’m so sorry…”

I longed to dial back my words.

@kmbuley

Therapeutic Fibbing softens the ache when your heart is breaking into a million tiny bits. #memoryloss #dementia #alzheimers #familycaregiver #dementiaawareness #motheranddaughter #fyp #dementiaadvocate #memorycare #livingwithdementia #caregiverlife #vasculardementia

♬ Classical piano performance “letter to parents” – Popolony

I had recently learned about “therapeutic fibbing”—bending the truth to match her reality—and “redirection”—shifting her focus. In hindsight, I desperately wished I had used one of those techniques that day and struggled to give myself grace.

Two-and-a-half weeks later, the senior living community hosted a reading and author’s chat for my novel Perimenopausal Women With Power Tools. Mom sat in the front row, alternately beaming and dozing. Guilt haunted me, knowing that, like my protagonist, Beth, I too was harboring a lie of omission—“the worst [kind],” according to my eighteen-year-old character, Kate.

Unbeknownst to my mom, she would be moving into memory care the following week. I’d stay with her for two days, then return home. My heart was breaking.

I spent several fitful nights lying beside her in her queen-size bed, agonizing about leaving and wishing for clairvoyance. If I knew Mom’s days were numbered, I would power alongside her until the end.

But then moving day arrived. I chased sleep for two nights in memory care, tucked into a rollaway at the foot of her twin bed. Every cell in my body ached at the thoughts of saying goodbye.

I waited until the last minute to tell Mom I was leaving. She was in the living room, watching a musical with several of the ladies. I said quiet goodbyes to staff and some of the residents, then squatted in front of her chair. I still had vacation time, plus hadn’t dipped into the Family and Medical Leave Act, but I couldn’t admit that staying and watching her decline was so damn hard. Instead, I lied and said, “I have to go back to work.”

“You do?” Anguish filled her face, and her eyes puddled as she grabbed my hands.

“I do.” I straightened, then added “I’ll be back,” and kissed the top of her head through my mask. “I’ll call you when I get home,” I said, knowing my standard words were a fib now too. “I love you,” I managed, unable to stop the quiver, but turning before tears streaked my cheeks.

I did go back, including for a weeklong stay and some other overnights throughout the next twenty-six months. During that time, Mom graduated from hospice care twice, then was referred a third time the day before she died. I was blessed to be at her bedside when she exhaled a final, peaceful sigh.

In truth, I’m grateful for more than sixty years of memories.

Kay & Dan Antonietti 1995.
Kay & Dan Antonietti 1995

I’m also grateful that, whether my mom is somewhere over the rainbow or on the other side of the veil, her journey through dementia is over and she’s living her new, best life.

14 thoughts on “Truth. Lies. Priceless Memories.

  1. Beautiful memories my friend. I had the privilege of taking care of my Mom in her final days and all of those moments are treasured. You were a wonderful blessing to your Mom.

    1. Thanks, Patti. I remember your tenderness with your mom when we were in grade school. You were the best daughter ever! I’m glad you have treasured memories from her final days. You too were a wonderful blessing to your mom.

  2. Ohhhh Karen! So well written and heartfelt💕. I can honestly see, in my mind eye, everything you described so perfectly! And those beautiful blue eyes starting to overflow only to be replaced with a sweet smile. Such an amazing blessing you were in those memory making final days, on this side of eternity💕

    1. Thank you, Bev. And yes, Mom’s beautiful blue eyes held a bit of sparkle as my sibs and I sang Irish tunes to her on Saint Patrick’s Day–her last full day on this side of eternity.

  3. I was my Mom’s primary caregiver for her last years, until she had to go into memory care. Even when she was there I would visit her three or four times a week and every Sunday. I watched in sadness as the disease progressed and the fire in her eyes slowly went out. When she had a heart attack, I followed her instructions in her living will and told the doctor not to treat her, just oxygen and I.V. saline as she couldn’t drink water anymore. A week later she passed, surrounded by all but one of us kids. When my Brother Roy was the last one to arrive he gently held her hand and said “Mom, I love you”. That was 2006. Two years ago Roy died of West Nile Virus. Now he is with Mom and Dad and our Brother Jim who died in 1952. I am now watching my dog wither away and am thinking of them. I realize when my dog passes she shall join them and all the other dogs and cats I have known. For now I understand, we are all family, and our spirits are truly eternal. I am old and increasingly frail myself, but forever I will remember and love them all.

    1. Oh, Russell, what a journey of love, loss and grief. Your years with your mother were a precious gift. I’m sorry to hear about you and your dog, but I love your sentiment: For now I understand, we are all family, and our spirits are truly eternal. Thank you for sharing. Peace to you, my friend.

  4. Karen- I was deeply honored to take care of your beautiful mama all these years!! I miss her and all of you so much!!

    1. You will always hold a special place in our hearts, Kim. Thank you for your kindness, compassion and love throughout the years.❤️ Because of you, we were able to be with our sweet momma when she could no longer battle COVID. Being with her during her final hours was a gift I will treasure forever.

  5. Blessed memories, cherish knowing you were there with her, even when she didn’t remember. Your presence was remembered
    ♥️

  6. I recently lived a similar process with my mom who passed a few months ago from the final stages of Parkinson’s dementia. Such a difficult journey. Thank you for putting it all in perspective so beautifully. Hugs.

    1. Cindi, your mom was a treasure. Her wisdom, insight and skill were invaluable to me and others when our writer’s group gathered around each other’s tables years ago to share our work.
      What a gift for you, your mom and family to be together as her precious life came to its final chapter. She would have been so humbled and awed by your words, some of which I’m sharing below.

      Happily, there is no other way to do Faye Killian Olsen justice than to elevate her countenance over her accomplishments. Her life’s work was the circle of friends and loved ones she has nurtured. In writing her story, I never asked her how she wanted to be remembered, because I have always known the answer. She didn’t care. She was always more interested in the moment than the past. Always more curious about the present than the future. Always comfortably aware that all that mattered was the here and now. I hope you will all take this advice with you, today and always as her lesson. Don’t waste your life in fear or worry. Be in the moment. And life will always deliver.

      Hugs to you, Cindi, and thank you for your beautiful words.

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